Tuesday, October 19, 2010

Fuck You, Universe

I feel like I have just had the wind knocked out of me.  As though someone has told me of a death in my family.  That is the heaviness I feel in every molecule of my body at this moment.

I just received a phone call from our insurance company from a representative that told me that the ABA services we have been receiving in-home since May...the ones I worked my ass off to get for two years...were 'authorized in error and will not be covered past today.'

I am beside myself.  I am sobbing and screaming out loud and have no idea what to do next.  The other half is in a business meeting and will call me afterward, but I don't know how we're going to counter this decision with his company.

M is a different kid since our therapist began working with him.  He is happier and calmer from the engagement she provides him each afternoon.  MY life has been happier and calmer since she started coming here.  Holy shit, you guys, I am FREAKING OUT over here.

Please, please let this be a bad dream.

I know it sounds dramatic, but this is so important to our entire family.

I am absolutely crushed right now.


Rhea said...

I feel for you. Really. I have been there, been panicked over losing benefits I worked so tirelessly to get. I sincerely hope you can resolve this in some way because finding a worker you trust and can see benefits with is invaluable.
I guess I just wanted to say I hear you.

fer said...

I know how important this has been to M and to all of you. I am hoping there is a resolution to this that restores his services, your peace of mind, and your faith in what is right and just...

Thinking of you.

starnes family said...

So, so sorry. I can only imagine.

Prayers coming your way for a good solution.

Anonymous said...

I am so sorry. I hate insurance companies! My thoughts are with you.

Anonymous said...

If your insurance plan is underwritten in california, you can call and ask them how they intend to fulfill their obligation under Assembly Bill 88. This link has helped me so much and also lists other states with similar legislation (in case your insurance is underwritten in one of those states) here it is:

Mama Deb said...

Thanks, everyone. I appreciate having a safe place to rant and rave!
My husband's company is back in TX, so AB 88 doesn't apply. I tried using that with them when I first started trying to get ABA two years ago. That's when they told me about the parity laws and how his company didn't have to abide by AB88. The Wellstone-Domenici Parity Act that began this year became our savior in terms of negating a self-insured company's ability to deny parity.
Anyhow, he seems way more confident that this will be resolved positively than I do. I could barely look our wonderful therapist in the eye when she came to the house today. I just don't know what I would do without her!

Nicole Callihan said...

O Deb, I'm really, really sorry. Thinking of you. Hope it all works out.

SquarePeg said...

Call Lisa Valerio - she's amazing at fighting these guys!

Mandy said...

Bless your heart, sweet Deb. I hope that you get positive answers and support very soon. Much love and hugs to you all!!

redheadmomma said...

oh CRAP. I'm so sorry - please keep us updated. I won't feed you any crap about "silver linings" - that just friggin' sucks.


Anonymous said...


I'm a visitor from Hopeful Parents. I'm sorry about your insurance fiasco. I saw you live in Calif like me and I wondered why your Regional Center isn't funding your son's ABA instead of insurance?