My head is filled with pollen and my mood is a bit lackluster these days. I've thought about blogging, but know that it would be more of the blah, blah, blah, hoping M will finally get what he needs, blah, blah, blah, hate waiting and playing bureaucratic games, blah, blah, blah...
So instead, I leave you with an excerpt from a recent post I read by the ever-amazing writer and autism advocate, Squid. Family planning is something the other half and I have vastly different opinions on, thus we spin our wheels, never actually getting anything accomplished. And, by the way, my opinion is right in case you were wondering! Read on and then click on over to her site for the rest of this valuable information...
A lot of us like to put our hands over our ears and shout LA LA LA LA LA when asked to think about formulating a Life Care Plan, because that means we're envisioning our children with special needs having a future without us at their side.
But denial and avoidance does both us and our children a disservice. The time to think about planning for our children's future is now -- the earlier we start, the more comprehensive our planning will be. And the steps involved are both more involved yet less daunting than you may think.
Read more here.
2 comments:
This has been on my mind a lot lately, and no we have not done any of that type of planning. It's terrifying.
Not to be a total downer, but it reminds me of a recent conversation with friends who parent typically developing children. One asked me what my hopes were for E's future. I ended up discussing the fact that in some ways I hope to outlive him because the thought of him going on in this cruel world without me there advocating for him is absolutely terrifying.
It is what it is. But man does it suck.
I most certainly do not think you are alone in your thoughts :(
It's another one of those things you feel you can't say out loud even though so many of us are thinking it.
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